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STARS Patient Information


This page contains stories of STARS members with Syncope.

Steve's Story

Hi my name is Steve. I'm a 42 year old teacher and keen fitness enthusiast! Last summer, without warning, I blacked out in the early hours of the morning.





Hayley's Story

I am Hayley and I’m 24 years old and I’m a Teacher. I began to have syncope attacks at the age of 13.



Christopher's story

You don’t have to punish yourself. Do yourself a favour – if you suffer from reflex syncope, take action now and ask your GP to refer you for some CBT.


Natasha's story

I'm Natasha and I’m 17 next week. From as young as I can remember I have always been different. I have constantly had to be careful. I'd black out and have no recollection of it. When I was younger I was in and out of hospital with test after test.


Carole's Story

I am Carole. I'm 44 married to Adrian and we have 3 children 20, 18 and 12. I am an Aromatherapist and also at college studying Sports Massage. I have suffered occasional blackouts over the past few years- about 6 or 7 in total. They seemed to come around October/November or Jan/Feb and I would get horrendous stomach cramps and then diarrhoea. I would want to go to bed as I felt so ill and then would be sick. Within 20 minutes of vomiting I passed out over and over again vomiting as I came round, convulsing and eyes rolling in my head. I'm told I stop breathing and then grunt as the breathing starts up again.


Emilie's story

On August 30th, 1997, my seemingly healthy 22 year old daughter, Emilie, died suddenly, in her sleep, from sudden cardiac arrest.


Mary-Ellen's Story

Three years ago I had a brilliant job that I loved but because of my falls and other symptoms I was accused of having a drinking problem by people who would gain financially if my reputation was damaged. Although the allegation was completely without foundation we could not find a doctor who could explain why I fell so often without warning. I thought I was going insane. Finally, I was made redundant despite the support from clients and friends who knew me well and of course my wonderful husband of 35 years.


Jennifer's Story

I had my first real episode aged 14, sitting at my desk in school, and from then on I'd pass out three or four times per week. Eventually my doctor referred me to the medical clinic where they were convinced that I was suffering from epilepsy. I was given countless EEGs and CT scans, but they told me that there was nothing wrong so my mum had to push for a tilt table test. When this proved positive, I was referred to the cardiac arrhythmia clinic where I was given beta-blockers. These didn't help much, so I went through the process of being given a different drug each time I saw the cardiologist. As a last resort they coupled my beta-blockers with Midodrine: so far this combination seems to work most of the time.


Marian's Story

My name is Marian and I am 47 years. I live in the Netherlands. My story of blackouts, started at the age of 22 years. In the summer of 1983, lymph node cancer, Hodgkin disease was diagnosed. At the same time I experienced some strange symptoms. I couldn’t pass urine easily, I had bouts of diarrhea and found it hard to read. In addition I couldn’t perspire and had a very dry mouth. Further more I had blackouts, all the time. Even if I lifted my head up from a lying position, I lost consciousness. On the moment I was lying down again I recovered consciousness. Standing, sitting, walking, was not possible. The complaints were a mystery for the doctor in the regional hospital. So my internist sent me to a specialist in Hodgkin disease and from there I visited dr. Wieling and dr. van Lieshout both working at the AMC, Academic Medical Center of the University of Amsterdam. They found the cause and later also the answer of my complaints.


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