STARS Patient Information
The patient stories section displays real life experiences of syncope from STARS members of all ages.
Reading about someone who has been through the same diagnosis, treatment and concerns can provide great reassurance, support and advice to others who are going through the same condition. Patient stories are an important way of getting the message out there. And this is where we really need your help. Would you be happy to share your story and help us raise awareness of syncope, RAS and PoTS?
If you would like to share your story then please email: firstname.lastname@example.org.
We cannot guarantee that every patient story will be used but the more stories we have, the more awareness we are likely to achieve.
Following childhood faints, Joyce began to blackout even more as an adult.
In May 2017, my healthy 67 year young father passed away very unexpectedly, he died in his sleep, from sudden cardiac arrest.
In August 2007, my seemingly healthy 22 year old daughter, Emilie died in her sleep, from sudden cardiac arrest.
Hi, my name is Pam and I was an epileptic.
My story is one of misdiagnosis. I was properly diagnosed in 2004 at the age of 24.
With medication and life style changes, I am now stable and enjoying retirement.
Epilepsy? It was "hard to swallow".
Miss Massachusetts 2006, Michaela Gagnes's story
No faint is a simple faint.
Landon has Neurocardiogenic Syncope and suffers from Reflex Anoxic Seizures.
AK who once could not eat is now a very vibrant, fun loving, talkative, energetic little girl.
Marty - a 36 year old diagnosed with acute Malignant Vasovagal Neurocardiogenic Syncope.
Hannah - a 10 year old who lives with Vasovagal Syncope.
Claire - a 7 year old who’s mother tells their story of their long road to a diagnosis.
Suzanne Stewart's Story
Suzanne - diagnosed with Neurocardiogenic Syncope.
Abigail’s story that began at age 1 years old.
Christine learned from her experience in dealing with Syncope is to NEVER give up.
A family’s experience with Reflex Anoxic Seizures (RAS).
Nikki, 12 years old diagnosed with POTS