STARS Patient Information

Patient Stories

The patient stories section displays real life experiences of syncope from STARS members of all ages.

Reading about someone who has been through the same diagnosis, treatment and concerns can provide great reassurance, support and advice to others who are going through the same condition. Patient stories are an important way of getting the message out there. And this is where we really need your help. Would you be happy to share your story and help us raise awareness of syncope, RAS and PoTS?

If you would like to share your story then please email:

We cannot guarantee that every patient story will be used but the more stories we have, the more awareness we are likely to achieve.

Joyce's Story

Following childhood faints, Joyce began to blackout even more as an adult. 

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Shawn's Story

In May 2017, my healthy 67 year young father passed away very unexpectedly, he died in his sleep, from sudden cardiac arrest.
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Emilie's Story

In August 2007, my seemingly healthy 22 year old daughter, Emilie died in her sleep, from sudden cardiac arrest.
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Pam's Story

Hi, my name is Pam and I was an epileptic.
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Amanda's Story

My story is one of misdiagnosis. I was properly diagnosed in 2004 at the age of 24.
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Eileen's Story

With medication and life style changes, I am now stable and enjoying retirement.
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Martha's Story

Epilepsy? It was "hard to swallow".
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Miss Massachusetts 2006, Michaela Gagnes's story

No faint is a simple faint.
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Landon's Story

Landon has Neurocardiogenic Syncope and suffers from Reflex Anoxic Seizures. 
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AK's Story

AK who once could not eat is now a very vibrant, fun loving, talkative, energetic little girl. 
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Marty's Story

Marty - a 36 year old diagnosed with acute Malignant Vasovagal Neurocardiogenic Syncope. 
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Hannah's Story

Hannah - a 10 year old who lives with Vasovagal Syncope. 
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Claire's Story

Claire - a 7 year old who’s mother tells their story of their long road to a diagnosis. 
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Suzanne Stewart's Story

Suzanne - diagnosed with Neurocardiogenic Syncope. 
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Abigail's Story

Abigail’s story that began at age 1 years old. 
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Christine's Story

Christine learned from her experience in dealing with Syncope is to NEVER give up.
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Adam's Story

A family’s experience with Reflex Anoxic Seizures (RAS). 
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Nikki's Story

Nikki, 12 years old diagnosed with POTS
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