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People with AF provide important perspectives on designing real-world studies

Elisabeth M Oehrlein (National Health Council, USA) and colleagues write, in a research letter published in The Patient - Patient-Centered Outcomes Research, that the perspectives of people with atrial fibrillation (AF) “have important implications for the design of real-world evidence studies and communication of findings to patients”. They add their approach to engaging patients, as outlined in their research letter, “can assist other researchers interested in engaging patients in developing patient-centred real-world evidence”.

According to Oehrlein et al, despite substantial interest in both real-world evidence and patient engagement, examples of effectively engaging patients in real-world study data development are limited. Therefore, the Pfizer–Bristol Myers Squibb (BMS) Alliance (Pfizer–BMS) — in partnership with the National Health Council (NHC) and the Arrhythmia Alliance (A-A) — sought to engage with people diagnosed with AF through an advisory board (AdBoard) to understand patient perspectives and enhance patient centricity for future AF real-world data studies in the short term and AF real-world evidence in the long term.

They found that the Patient–AdBoard participants provided insights “related to patient experiences with AF, outcomes most important to them, and preferred communication modes for study findings”.

Read Engaging Patients in Real-World Evidence: An Atrial Fibrillation Patient Advisory Board Case Example here


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