Information & Advice for Arrhythmia Patients
"Every Heartbeat Counts" | Maia Lemardeley's CPVT Journey
Maia, an inspiring young lady and pupil in Year 6, has written and filmed a TED talk about living with her heart condition (CPVT) along with the help that she has received.
Inherited Cardiac Arrhythmias
A Q&A session with Trudie Lobban MBE and Dr Hugh Calkins regarding inherited cardiac arrhythmias.
Device Treatment For Arrhythmias
An interview between Trudie Lobban MBE and Dr Hugh Calkins touching on the different devices used for the treatment of arrhythmias. For more information, contact us.
Know Your Pulse
This video teaches you how to check your pulse, it only takes 30 seconds.
Know Your Pulse to Know Your Rhythm - it could save your life.
Is your heart rhythm too fast, too slow or jumping around (irregular)?
It could be an arrhythmia (heart rhythm disorder). Over a lifetime 1 in 4 of us will develop an irregular heartbeat or pulse. Learning to take your pulse to monitor your heart rhythm can help with early diagnosis.
Our Know Your Pulse campaign promotes the need for us all to be aware of our pulse. We hold regular KYP events where we conduct FREE pulse checks using a one lead mobile EKG device which detects heart rhythm and pulse, and confirms if yours is normal or AF suspected. AF Suspected EKG results can be directly emailed to you, to be taken and discussed with your healthcare provider.
Contact us if you would like to attend one of our KYP events or host one yourself.
Living with an Arrhythmia - Viewer discression advised
Everyday people live and suffer with the effects of an Arrhythmia. Here you can see an example of how sudden a person's life can be put at risk. This is why it is so important to Know Your Pulse to Know Your Heart Rhythm. Regularly monitoring your pulse can help with early diagnosis. If you know someone who has, or you yourself are living with an Arrhythmia, contact us for support. We also offer free resources, which can be found here.
1000 Americans suffer Sudden Cardiac Arrest (SCA) everyday. During SCA every second counts and immediate response from bystanders is key, by implementing the chain of survival, calling 911 and administiring CPR, you buy the victim crucial time before EMTs can arrive on scene. CPR alone provides a 9% chance of survival, however the use of CPR and an Automated External Defibrillator (AED) combined increases this to over 50%.
Do you know where your nearest AED is located?
Arrhythmia Alliances believes individuals do not have adequate access to AEDs, SCA education or CPR/AED training. The lack of access to these vital components results in unnecessary lives lost. Our Defibs Save Lives campaign fundraises to place AEDs in publicly accessible locations. ANYONE can use an AED and no additional harm can be caused with the use of an AED, all you can do is save a life. We also provide educational resources on SCA and access to CPR/AED training. If you would like to utilize these services, hold a Defibs Save Lives event or have Arrhythmia Alliance speak at your workplace, school, clinic, community etc about SCA and the importance of AEDs, please contact us.
Does your workplace, school, clinic or community have a publicly accessible AED?
If you would like to purchase an AED or if you would like assistance in fundraising for the placement of an AED, contact us - we offer a great range of fundraising support and information including; training resources, media support and press releases, materials for fundraising and raising awareness, all of which can be tailored to your community.
Artial Fibrillation Information
An interview with Trudie Lobban MBE and Dr Hugh Calkins discussing Atrial Fibrillation.
David Premo - AF patient and AF-related stroke survivor
Did you know, AFib patients have a 5-fold higher risk of developing an af-related stroke and a 2-fold risk of dying from stroke.
Watch as David Premo, an atrial fibrillation patient, af-related stroke survivor and one of Arrhythmia Alliance/ AF Association dedicated volunteer shares his journey to recovery.
In 2017, David suffered a significant af-related stroke with aphasia. Listen as he shares decision points, plans and actions taken to regain speech, resume his position as a university professor and gain recognition as a Division Director of Toastmaster. David’s success is a result of following the advice of Abraham Lincoln, “If it is going to be, it is up to me.”
Patricia - CPVT
When Patricia was diagnosed with Catecholaminergic Poluumorphic Ventricular Tachycardia (CPVT) she thought her life was over. However through support and help from friends and colleagues she realized, that in fact, it wasn't over, but that it was just a different way of living. Here she shares some of the emotion and life changes she experienced.
CPVT is a condition characterized by an abnormal heart rhythm (arrhythmia). As the heart rate increases in response to physical activity or emotional stress, it can trigger an abnormally fast and irregular heartbeat called ventricular tachycardia. Episodes of venticular tachycardia can cause light-headedness, dizziness and fainting (syncope).
Share your story and help others who may be awaiting or undergoing treatment for an arrhythmia. Your words can support and reassure patients on the road through treatment as well as those newly diagnosed, or caring for someone with an arrhythmia. Without your stories, we have no voice.
Protect Young Hearts - Parent Heart Watch
Sudden Cardiac Arrest (SCA) takes the lives of 1000s of young adults and children each year, but a simple heart screening could have saved them.
These are the voices of parents who know, help them to Protect Young Hearts by taking the Prevention Promise.
1 in 300 youths have an undiagnosed heart condition; "...you can't just listen to a child's heart to see if something is wrong because the issues that cause Sudden Cardiac Arrest in young people are structural and electrical in nature and those have to been seen and not heard." The stethoscope is over 200 years old, yet it is still the most common way to check a heart, a simple EKG can detect heart problems and prevent the tragedy of young lives lost. For young athletes and active youth having an EKG should be just as important as having the right equipment, sneakers and team jersey.
Is your school prepared if Sudden Cardiac Arrest (SCA) strikes a student, teacher, parent or visitor?
The survival rate of SCA increases five-fold to over 50% when an Automated External Defibrillator (AED) is used alongside CPR. Having an AED in an accesible location within schools is vital to helping save uneccesary young lives lost from SCA. Students and Teachers should be made aware of the location of an AED and educated on it's use so that in the event of a SCA event ANYONE can use an AED to save a life.
Arrhythmia Alliance is currently developing an educational program to be implemented in local schools so that all grades are taught CPR and the correct use of an AED.
Now is the Time
Click here for more informative videos on our YouTube channel.
Catheter Ablation For Atrial Fibrillation (AFIB)
Learn about what catheter ablation is and how it's used to treat atrial fibrillation (AFIB). Doctors and cardiologists from the Cleveland Clinic describe the catheter ablation procedure, what it is, how it's done and what results can be expected from this surgery.