Information & Advice For Arrhythmia Patients
If you have experienced complications following a bleed due to anticoagulation, please complete this survey
Atrial Fibrillation (AF) is the most common type of arrhythmia (irregular heart rhythm). Some people experience symptoms such as dizziness, fatigue or palpitations but some people do not experience any symptoms (asymptomatic). However, a simple pulse check can help Detect AF; therefore, AF Association, and its sister charity Arrhythmia Alliance, runs the Know Your Pulse to Know Your Heart Rhythm campaign. Click here to find out more about how to Know Your Pulse.
The key concern with AF is the risk of AF-related stroke, which can be worse than other types of stroke. To reduce the risk of AF-related stroke, people with AF are often given anticoagulant therapy. While anticoagulant therapy is very important for reducing the risk of AF-related stroke, it can cause bleeding in some patients. There is currently not enough information about how bleeding affects a person’s health and welfare. Therefore, a new study — EQUAL-AF — is evaluating the effect of bleeding on the quality of life of people with AF (taking anticoagulants).
The EQUAL-AF researchers want to engage with people with AF to understand what living with the condition is like. They specifically want to know more about how having a bleed has affected someone with AF. Therefore, the researchers are asking people with AF who have recently had a bleed to take part in two surveys. The aim is that people complete the first survey within four weeks of a bleeding event, and then complete the second survey three months later. Each survey takes about 20–30 minutes to complete and can be filled in electronically on a computer, tablet or mobile phone. The researchers need an email address to send a reminder at the three-month time point, but they will not share identifying details with anyone outside of the research team.
The study will increase awareness of how people with AF feel bleeding affects their quality of life and will be used to inform larger scale research on the impact of bleeding for AF patients.