STARS Patient Information

I am 17 years old and I am chronically ill. I have official diagnoses of POTS, EDS (and hyper-mobility) and gut dysmotility, all of which affect me daily and hugely impact my life.
Becky was initially diagnosed with low BP and Syncope in 2012 & her diagnosis changed to Postural Tachycardia Syndrome (PoTS) in 2014.
I had multiple dizzy spells when standing up the kind that most people have had at some point in their lives, maybe when standing up from a hot bath. 
I was given a tilt table test. I almost passed out during the test and was given a positive diagnosis of neurocardiogenic syncope.
My journey started in 2012 aged 17. I was working on Saturdays as a shop assistant in a bedding shop often lifting heavy items.
Despite suffering from frequent faints and dizzy spells, Jane, 68, has driven her energy into helping raise awareness of her condition.
It first happened nearly five years ago. I was taking a shower when I started to feel a bit "wobbly".
This year, I was diagnosed with postural orthostatic tachycardia syndrome (PoTS), following twenty years of illness. 
I started fainting sporadically at the age of 12 and my GP put the episodes down to me being a tall, young, vegetarian female.
It all started in 1994. I was 20 years old and studying for my Masters in Art History. I had always been a healthy happy person with a positive outlook  on life and very down to earth.

More PoTS Stories

Get in touch for more help and information

+44 (0) 1789 867 503info@stars.org.uk


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