STARS Patient Information
This page contains stories of STARS members who have suffered misdiagnosis.
My story of blackouts began just after I graduated from university in 2001. Looking back I now understand how a rugby injury and an uncomfortable work chair were likely triggers for the story I’m writing now. Read more
Right or wrong a diagnosis defines a person. As that person or patient – I have identified myself as my diagnosis for 20 years. I struggled with “black outs” or “loss of consciousness” from the time I was a little girl. Read more
If I think back my first loss of consciousness was in 1983 when my son was 9 months old, he is now 28 years old! Read more
My story is one of misdiagnosis. I was properly diagnosed in 2004 at the age of 24. Read more
When I was little I was diagnosed with epilepsy and lots of things would trigger a fit, like being sick. I had lots of medicines to try and control the fits but nothing worked. Read more
After spending the day relaxing in the July sun in my family garden I headed off to start work in my local pub where, after a couple of hours, I suffered my first convulsion. Read more