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STARS Día del paciente

STARS Patients Day provides an opportunity to meet and liaise directly with medical professionals, to pose relevant questions and gain a greater insight into developing technologies and techniques.

The next STARS Patients Day will take place on:  

Sunday 9 October 2016
International Convention Centre (ICC), Birmingham UK)

To register for STARS Patients Day please download and print the registration form below and post it to STARS, PO Box 175, Stratford upon Avon, Warwickshire, CV37 8YD OR complete the fillable form and email it back to Rachel Harris -r.harris@heartrhythmalliance.org.

STARS Patients Day Registration Form

10:00 Welcome
10:10 What the world thinks: expert statements
10:30 Fatigue: causes and management
10:50 Rehabilitation in autonomic disorders
11:10 Break
11:20 Plenary talk: PoTS under the microscope
11:50 You are what you eat
12:20 A myth is as good as a smile
12:45 Lunch
13:45 Working with your health team
14:10 Working with researchers
14:35 Getting started with exercise prescriptions
15:00

Interactive sessions

Engagement and priority-setting in research
A focus on vasovagal syncope
My child/BF/GF doesn’t seem to fit a pattern
Tilt table testing - is it necessary?
What should I expect from health care
PoTS & VVS in the north
PoTS & VVS in the west country and midlands
PoTS & VVS in the south and London

16:00 Summary and wrap-up

 

For more information please contact Rachel Harris r.harris@heartrhythmalliance.org / 01789 867 517 

STARS Patients Day 2015

Details on previous Patients Day events can be found below:

Chair:    Prof Richard Sutton    
10:00 Welcome and introduction   Trudie Lobban
10:05 Getting better on our own:  latest data on vasovagal syncope   Dr Robert Sheldon
10:30 A doctor's perspective on working with syncope and syncope patients   Dr Tushar Salukhe
10:55 What do we know about CBT and physiologic disorders?   Dr Morvenna Opie-Moran
11:15 Break    
11:30 A molecular cause for PoTS and vasovagal syncope - a special lecture   Dr Satish Raj
11:55 A doctor's perspective on working with PoTS and PoTS patients   Dr Nick Gall
12:15 Specific advice sessions:
> Exercise
> Driving
> Sleep, POTS, VVS
 
Dr Satish Raj
Dr Nick Gall
Dr Morvenna Opie-Moran
12:45 Lunch    
Chair:    Dr Nick Gall    
13:45 Working Groups:  World Café method
> Accessing the right kind of help;  managing fatigue and brain fog;  coping with dizzy spells and other symptoms;  healthy relationships at home and in the community
  Dr Axel Brandes
Dr Nick Gall
Dr Lesley Kavi
Dr P Boon Lim
Lorna Nicholson
Dr Morvenna Opie-Moran
Dr Satish Raj
Dr Robert Sheldon
Prof Richard Sutton
14:45 Group reports    
15:00 A special session with Blair Grubb   Prof Blair Grubb
16:10 Summary and thanks    
16:15 Close    

 

 


Get in touch for more help and information

info@stars-es.org

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