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AF Information & Advice For Patients

Links

The following links are for groups, charities and other entities with an interest in or linked to the care and management of atrial fibrillation and associated medical conditions. This is not an exhaustive list, and it is constantly evolving. If there are any websites you feel we should be including, please let us know.

Please Note: While we can signpost you to websites, we are not responsible for information that you may collect from these sites. 

 

Description: http://www.atrialfibrillation.org.uk/files/image/AllClear_Support.jpgAllClear Life

AllClear Life – a unique fast on line service which allows those with Atrial Fibrillation, or other forms of Arrhythmia, to obtain an indication of the likely cost of Life Insurance. AllClear Life also offers an 'Expert Referral Service' for those with more complex conditions. 

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Anticoagulation Europe (UK)

AntiCoagluation Europe is a UK registered charity founded in 2000.  Their aims are: the prevention of thrombosis; the provision of information, education and support; the promotion of independence - supporting people to take an active part in their own healthcare.
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Anticoagulants In Atrial Fibrillation

Guys and St Thomas- Our team have developed a series of short videos about the use of anticoagulants in atrial fibrillation.
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Anxiety UK

Anxiety UK works to relieve and support those living with anxiety disorders by providing information, support and understanding via an extensive range of services, including 1:1 therapy.
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Arrhythmia Alliance - The Heart Rhythm Charity

Arrhythmia Alliance (A-A) is a coalition of individuals, patients groups, charities, professional medical groups and industry allies. These groups work together under the Arrhythmia Alliance umbrella to raise awareness of cardiac arrhythmias.
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The Atrial Fibrillation Blog

The Atrial Fibrillation Blog is for talking about living with atrial fibrillation and ways to deal with it. This blog explores atrial fibrillation risks, symptoms, treatments, and innovative cures, and we invite you to join us on this journey to wipe out afib.

Atrial Fibrillation (A-Fib) Support Community

This is a support group that is part of the larger “Dailystrength.org” which is an online collection of over 500 support groups.
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Atrial Fibrillation - Resources for patients

This site is designed primarily for non-medical personnel and is written from a patient's point of view. (The author had A-Fib and was cured in April, 1998, by the use of a procedure called Focal Catheter Ablation (Pulmonary Vein Ablation)). 
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British Association for Behavioural and Cognitive Psychotherapies (BABCP)

BABCP is a multi-disciplinary interest group for people involved in the practice and theory of bevavioural and cognitive psychotherapy.

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Description: http://www.atrialfibrillation.org.uk/files/image/Images/Bupa%20booklet%20cover.JPG

Bupa Support

Bupa have developed a patient information guide on atrial fibrillation.

Download guide

 

Cardiology News

Cardiology news is a unique publication that now combines the interactivity of the web to give you an endless resource platform. Our aim is to continue to develop as an invaluable forum for the communication of news and information from every aspect of Cardiology.

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CardiologyHD.com

CardiologyHD.com is the new website for the publication Coronary Heart. Completely redesigned with a modern layout, the website uses the latest in web technology including video and social media integration. All articles from previous editions can be found on the site
Read more

Cardiomyopathy UK

Cardiomyopathy UK is a specialist charity providing information, advice and support to enable anyone affected by cardiomyopathy to live as full a life as possible.

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What is Carers Direct?

Carers Direct is a national information, advice and support service for carers in England. Available online at www.nhs.uk/carersdirect and as a free, confidential helpline seven days a week on 0808 802 0202, it provides accurate, relevant information for carers and those who support them.

Coherex

Coherex Medical is focused on the development and commercialisation of a device for the treatment of patients diagnosed with atrial fibrillation and at risk for stroke.

Council of Disabled People

Free training for disabled people in Warwickshire

A project that offers free training to disabled people in Warwickshire is holding fortnightly drop-in events in the following locations:

Coventry, Stratford, Warwick, Leamington, Nuneaton and Bedworth.

The ASPIRE project is open to people aged 17 to 65 and offers training sessions to help build confidence and communication skills.

The drop-in events are on a fortnightly basis from 11.00am to 2.00pm on a Wednesday, at the Koco Building, Spon End Arches, Coventry and the other locations and dates are yet to be confirmed.

The Council of Disabled People who are setting up the groups hope to have the new groups established by September.

At the group, participants can get help and advice, listen to guest speakers, play games and activities and enjoy a free lunch and refreshments.

For more information call Mark or Lauren on 02476712984.

View flyer

www.cdp.org.uk

Counselling

Accredited counsellor with the British Association for Counselling and Psychotherapy. I have experience working in a large G.P. practice and now have a private practice in the South West. I have personal experience of Atrial Fibrillation and how debilitating it can be. In offering counselling in this specialist area I have undertaken much personal research. Counselling provides space to reflect away from everyday pressures and can help you to explore stress triggers, recognise unhelpful patterns, develop self management techniques, build confidence and manage life better on your terms. 

For further details please contact: hillyc@btopenworld.com

Counselling Directory

Counselling directory, a site designed to provide a counselling support network across the UK, enabling those in distress to find a counsellor close to them and appropriate for their needs. This is a free, confidential service. Every counsellor on the site who has submitted their profile has either sent a copy of their qualifications and insurance cover to us, or is registered with a professional body online with recognised codes of ethics and practice, this way we can be assured of their professionalism.
Website: www.counselling-directory.org.uk/

Diabetes UK

Diabetes UK is the leading charity that cares for, connects with and campaigns on behalf of every person affected by or at risk of diabetes.

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Disability Grants

A directory of grants for the disabled including grants for disabled children, disabled adults, disability groups and much more.

Visit the website - www.disability-grants.org

Dot Medical

Dot Medical is the leading supplier of Internal Cardioversion Catheters in the UK. Internal Cardioversion is a technique whereby patients in AF can be Cardioverted internally using a special catheter, rather than externally. After talking to a patient who had undergone this procedure we realized that very little information is available to the public related to this very common procedure. We have therefore invested in creating a website which can be seen at www.internalcardioversion.com.

Dronedarone (Multaq)

Information and summaries for Frequently Asked Questions is now available on this recently licensed new anti-arrhythmic medication
visit www.multaq.com

Description: http://www.atrialfibrillation.org.uk/files/image/Images/Edu%20for%20Health%20logo.jpg

Education for Health

Taking action and transforming lives worldwide by focusing on the education of health professionals as a key factor in improving patient health and quality of life.

www.educationforhealth.org

European Journal of Arrhythmia & Electrophysiology is a peer-reviewed, open access, bi-annual journal specialising in the publication of balanced and comprehensive review articles written by leading authorities to address the most important and salient developments in the field of arrhythmia and electrophysiology.

European Society of Cardiology (ESC) - AFib MattersDescription: http://www.atrialfibrillation.org.uk/files/image/141104-European%20Society%20Cardiology%20logo.PNG

The European Society of Cardiology (ESC) represents over 80,000 cardiology professionals, principally from across Europe and the Mediterranean basin, but also from the rest of the world.

Visit ESC

Visit EHRA

Visit AFib Matters

ESC's AFib Matters website is a patient-centred website for AF patients which aims to provide clear and reliable information and practical advice to people with atrial fibrillation, their families and caregivers. By improving knowledge and understanding of atrial fibrillation the aim is that people living with the condition will be able to manage their health more effectively so that they can live longer and more active lives.

FANS (Familial Arrhythmia Network for Scotland)

Description: http://www.atrialfibrillation.org.uk/files/image/Logo_Fans(1).jpgFANS is a managed clinical network hosted by NHS Tayside, and created to improve healthcare services for familial arrhythmia patients, their families and carers.
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Fast Facts: Cardiac Arrhythmias, by Gerry Kaye, Steve Furniss and Robert Lemery

A new title, to read more or order, benefiting from a 10% discount, visit: www.fastfacts.com and entre coupon code SP10 at checkout

For Patients, By Patients

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Healthtalk.org

38 people were interviewed about their experiences of AF, plus one partner.
 

HealthUnlocked

Join the AF community to get answers to AF questions from other patients, discuss health issues and get the support to help you make the choices that are right for you.

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Heart Research UK

Heart Research UK is a charity that has been Helping Hearts for 47 years by funding pioneering research and community projects that help people to live healthier, happier and longer lives.

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Helicon Health

Helicon Health supports shared care for the management of long-term cardiovascular conditions such as AF.

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Hypnotherapy Directory

Find a hypnotherapist near you. Only hypnotherapists who are registered with a recognised professional body, or qualified and insured are listed on this directory.

Left Atrial Appendage Occlusion (LAAO)

Left Atrial Appendage Occlusion therapy has become an established and increasingly popular alternative therapy for the prevention of AF-related stroke.

Living with AF

What happens when you are told that you have the irregular heart rhythm condition atrial fibrillation (AF)? Join Ian and Hannah through their experiences with AF.

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Lifeblood: The Thrombosis Charity

The aim of Lifeblood: The Thrombosis Charity is to increase awareness of thrombosis among the public and health professionals and to raise research funds to improve patient care.

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Life Cover for all

Description: http://www.atrialfibrillation.org.uk/files/image/life%20cover%20for%20all.jpg

We know that life is never predictable. That's why we specialise in finding Life Cover for All - throughout the UK. That's why we specialise in finding Life Cover for All especially those with medical conditions including AF.

Just because you may have a health problem, you still want to live life to the full and that includes taking advantage of the benefits that Life Insurance can provide.

With a medical condition, your life goes on . . . . . . and so should your insurance cover.

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MedicAlert 

Description: http://www.atrialfibrillation.org.uk/files/image/Fundraising%20&%20Donations/141015-sp-MedicAlert%20Logo.jpgMedicAlert is a global charity that provides a life-saving identification system for people with medical conditions which require specialist help. They offer a wide range of custom-made medical ID jewellery which is immediately recognised by medical professionals in an emergency.

National Pharmacy Association

As well as dispensing medicines, many pharmacies now offer additional services such as blood pressure monitoring which may be useful in the management of AF.  More information and a list of local pharmacies can be found on their website.

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Nutritionist Resource

Support and resources to be connected with a professional nutritionist.

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OATBook iPhone app offers help to warfarin patients

OATBook is a simple app to assist users undergoing Oral Anticoagulation Therapy (OAT) monitor and record their medication.

There's already enough to remember with your dosages, let alone testing, dietary and lifestyle restraints. OATBook will remind you of your upcoming appointments, store all your INR readings in one place, and allow you to set dosage reminders at specific times.

PMT Scribe Academy

No organ quite signifies love like the heart. The circulatory system is an all-embracing network responsible for the movement of blood, nutrients, hormones, oxygen, and other gasses. Without it, the body cannot maintain homeostasis, which is the body's way of managing a constant internal environment when dealing with external changes. For example, sustaining a consistent pH and a steady body temperature during a hot summer day.

Learn about the mechanism behind the “Lub-Dub” — how the heart first develops; how blood flows through the heart; and where the blood goes after it exits the heart.

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Learn about the mechanism behind the “Lub-Dub” — how the heart first develops; how blood flows through the heart; and where the blood goes after it exits the heart.

Quality in Care ProgrammeDescription: http://www.atrialfibrillation.org.uk/files/image/141001-QiC%20logo.PNG

Quality in Care (QiC) is a programme that recognises good practice in patient care and joint working in key therapy areas and allows these schemes to be shared and disseminated on a national level.

Its aims are to:
• Support healthcare providers practically to improve standards of care
• Identify and showcase existing initiatives which are  improving care
• Disseminate these more widely to enable individuals and teams working in healthcare across the country to learn from good practice.
 

Smokefree Action

Description: http://www.atrialfibrillation.org.uk/files/image/Images/Smokefreelogo_blue%20Member.jpg

SPARCtool

 Understanding AF-stroke risk and options in anticoagulation therapy.

View website

 

Description: http://www.atrialfibrillation.org.uk/files/image/Images/Stairlift%20Advisor%20logo.jpg

Stairlift Advisor

StairLift Advisor offer independent advice on choosing a stairlift for your home.

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Swift Locksmiths

Fast 24 hour locksmith services
http://swiftlocksmiths.co.uk/nottingham

The Stroke Association

The Stroke Association support stroke survivors to make the best recovery they can, campaign for better stroke prevention and care and fund research to develop new treatments and ways of preventing stroke.

Visit website

Description: http://www.atrialfibrillation.org.uk/files/image/Images/Therapy%20Directory%20logo.JPG

Therapy Directory

This is a comprehensive directory of alternative and complementary therapy professionals. Therapy Directory lists therapists who are registered with a recognised professional body or those who have proven their qualifications and insurance cover.

Description: http://www.atrialfibrillation.org.uk/files/image/Images/Trafford%20CIL.JPG

Trafford Centre for Independent Living

The Trafford Centre for Independent Living is a charity that helps people within the Trafford area of Greater Manchester to live more independently. They work with people with learning difficulties, mental health issues, physical disabilities and health conditions to provide them with the support, resources and information to be more independent and to improve their quality of life.

touchCARDIO.com is an independent information resource supporting physicians, clinicians and leading industry professionals in continuously developing their knowledge, effectiveness and productivity, via free-to-access content in multimedia formats.

 

WatchBP

Description: http://www.atrialfibrillation.org.uk/files/image/WatchBP%20Home%20S_90.jpg

Since January 2013 the National Institute for Health and Care Excellence (NICE)  recommends the use of the WatchBP Home A for routine blood pressure measurement by the National Health Service (NHS). This is the result of its medical technologies guidance that considers innovative medical devices for improvement of healthcare.

The WatchBP home A is a blood pressure monitor that has the capability to detect AF with high accuracy during blood pressure measurement, without any extra effort. 

The following blood pressure monitors are recommended:

WatchBP Home S 
WatchBP Home A 
WatchBP Home N

WBP Office AF 
WBP Office ABI


Get in touch for more help and information

01789 867 502info@afa.org.uk

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