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Support Groups

Sheffield ICD Support Group - Northern General Hospital

Established by Arrhythmia Nurse Specialist Jean Maloney, Sheffield ICD Support Group meets twice a year.

To read a little more about why the group was formed, click here

Next meeting

Monday 25th September 2017 - 11-3pm

For further information, please contact Julie Fear or telephone 01789 867 533

Susan's story

 

Susan underwent insertion of an internal cardioverter defibrillator (I.C.D), in July 2012 following admission to the Northern General hospital in Sheffield.

At a young age, she was diagnosed with Wolff Parkinson White syndrome and underwent a successful ablation procedure, going on to live a full, normal and active life until a few months ago when she developed viral symptoms and lethargy. This unfortunately led to her attending the A&E department in Sheffield, and was found to be in ventricular tachycardia – an abnormal and potentially life threatening heart rhythm whereby the bottom two chambers of the heart (ventricles), are beating much faster and out of synchrony with the top chambers (atria).

She was admitted for treatment and further investigations and an echocardiogram showed that her left ventricle was dilated and there was some incompetency within the pumping action of the heart muscle. Both of these conditions could be supported with medications, however, Susan continued to have short bursts of ventricular tachycardia.

We know from extensive research, that patients who suffer potentially life threatening arrhythmia’s with no other correctable cause are at high risk of further arrhythmia, therefore have an increased risk of sudden death. As caring professionals, we have a duty of care to provide patients with a safety mechanism in order to prevent this and after extensive appropriate counselling and education, she had a pectoral ICD inserted with no complications and was discharged to home soon afterwards.

Within days of her discharge, she received shocks from her device which warranted another short stay in hospital and changes in medication, however, she is recovering well both physically and psychologically with on going support and extremely informative information provided by Arrhythmia Alliance.

During Susan’s recovery phase, she began to return to her normal activities and is very involved with her local church in Hillsborough in Sheffield. Understandably, her friends and girls brigade colleagues had some anxieties about what to do if her ICD fired, or if she was not well. As they were also keen to learn about heart rhythm disturbance and the devices we implant in Sheffield, they invited me as Susan’s arrhythmia nurse to provide them with some information and guidance. In return, they wanted to make a donation to a charity of my choice and as the Arrythmia Alliance have been extremely supportive and helpful to me and my many patients throughout my few years as an arrhythmia nurse, I did not hesitate to suggest the money raised was given to them.

The evening was a great success with around 30 people attending. As well as talking about ICD’s and the implications for the procedure, we also discussed the high incidence of atrial fibrillation and the importance of regular pulse checks.

Along with selling donated gifts and delicious cakes, they received donations and thanks to their untiring efforts, they have very generously donated £225             

Susan has since become a member of Arrhythmia Alliance and feels this will provide her with added support and up to date knowledge about her heart rhythm disturbance.

 

Aims and objectives

  • To provide nursing, medical, technical and social support to patients, families and carers of those with an ICD
  • To allow patients, families and carers the opportunity to have a voice and be heard
  • To provide education and resources for patients, families and carers

 

​Meetings

All meetings will be held between 11am and 3pm at the Medical Education Centre, Northern General Hospital, Herries Road, Sheffield, S5 7AU. A full lunch will be provided. All welcome, please contact 0114 2269064 for further information.

For directions click here

 


Get in touch for more help and information

+44 (0) 1789 867 501info@heartrhythmalliance.org

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