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Arrhythmia Alliance (A-A)

Working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias

 

Campaigns & events

News & updates

Heart Rhythm Congress 2017

The largest heart rhythm event in the UK, Heart Rhythm Congress (HRC) provides unrivalled opportunity for health care professionals interested in the management of arrhythmias to share effective practice, show case innovation, learn about latest developments and network with UK & international delegates.

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STARS: Getting to the heart of fainting

There is no such thing as a simple faint – there is always an explanation and, if the work of Syncope Trust And Reflex anoxic Seizures (STARS) is anything to go by, that explanation could be because of an underlying arrhythmia (heart rhythm disorder). For Trudie Lobban MBE, CEO of STARS, she understands this better than anyone, with syncope (fainting) a condition that has affected her family for many years. After seeing her daughter randomly losing consciousness from the age of ten months, and with seemingly no explanation as to why, she founded STARS to build a collaboration of patients, carers, healthcare professionals and policy makers – aiming to spread the word and reduce misdiagnosis.

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PATIENT DIES AFTER BEING DENIED ACCESS TO LIFE-SAVING TREATMENT DUE TO LACK OF NHS FUNDING

Arrhythmia Alliance is calling on NHS England to reconsider its ‘Commissioning through Evaluation’ (CtE) process, following the death of a high risk atrial fibrillation (AF) patient from a bleed to the brain after being refused a potentially life-saving treatment. The evaluation process of left atrial appendage occlusion (LAAO), a treatment approved by the FDA and used across Europe, has meant hundreds of patients being denied access to this treatment with no guarantee when the evaluation will be completed to allow access.

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